Interim Survey Results Demonstrate Impact on Siblings of Children Suffering from Severe Epilepsy
Findings Presented by
“In a recently conducted survey by the
To date, there have been 183 total respondents to the Sibling Voices survey; this interim analysis focuses on the 27 youngest respondents (< 18 years old). Of siblings aged 9-12 years old, two-thirds reported feeling worried or scared when their sibling has a seizure and the majority (83 percent) feel easily scared and fearful their sibling will die. Siblings in the 13-17 years old range reported concerns over their parents being stressed and/or unhappy (60 percent) and over half (53 percent) reported feeling irritable and/or easily frustrated. Many of these same group of children (73 percent) stated they had been talked to about the possibility of their sibling with severe epilepsy dying and indicated feeling stressed and worried by this possibility (43 percent).
“The broader impact of severe childhood epilepsies on the entire family, and in particular to siblings, is an area of major concern expressed by many caregivers,” said
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Source: Zogenix, Inc.