Zogenix Introduces New Resources for Dravet Syndrome Siblings
The severity and unpredictability of Dravet syndrome, coupled with around-the-clock concern for the family member with Dravet syndrome, can cause significant challenges for all members of the family and increase a sibling’s risk for anxiety and depression. These new materials, created in collaboration with the
“The extra care that a family member with Dravet syndrome needs can have a huge impact on a family’s quality of life, compounded these days by the uncertainties of navigating a global pandemic,” said
The Parent & Caregiver Resources include:
- Guides on how to recognize signs that their children with a Dravet syndrome sibling may need extra support, ideas for staying connected, and suggestions on when and how to ask for help.
- Customizable information sheets that families can share with a sibling’s teachers and others to help them understand what Dravet syndrome is, how it might affect a sibling, and what to do when the family must attend to the child with Dravet syndrome when affected by seizures and medical emergencies.
- A pad of love notes parents can put in lunch boxes and back packs for siblings who could benefit from a reminder of how important they are.
The VIP Sibling Kits for children ages 4-18 contain:
- Journals with prompts for self-expression
- Positive affirmation coloring books
- VIP “Rockin’ It / Rough Day” wrist bands to help them show their mood
- VIP stress putty
- Kits for younger siblings (ages 4-10) also include a plush star and the Dravet Syndrome Foundation’s book My Sibling Is Special
- Kits for older siblings (ages 11-18) include a reversable “I need space / Come on in” door hanger and a VIP smart phone pop socket
The materials were presented to the
“My colleague on this project,
About the Zogenix Sibling Voices Initiative
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Source: Zogenix, Inc